Informal care

Informal caregiver stuck or overburdened? Here is what to do

As an informal caregiver you carry a heavy load. You also have the right to support, even if it does not always feel that way.

Informal caregivers are the silent engine of Dutch care. But every engine needs fuel.

As an informal caregiver you can get stuck not only when the care for your loved one is poorly organised, but also when your own capacity is stretched beyond its limit and nobody notices. Becoming overburdened is a real risk, and there is more support available than most people realise.

Below you will find a step-by-step guide, your rights as a caregiver, and where to turn when it becomes too much.

Step by step

1

Acknowledge that it is too much

Informal caregivers often wait too long before asking for help. Becoming overburdened is not a personal failure; it is a structural risk of a care system that relies heavily on unpaid care. Act early.

2

Contact your local caregiver support centre

Almost every municipality has a caregiver support point or consultant. They know the local options and can help you apply for the right support, or accompany you to meetings if needed.

3

Apply for respite care

Submit a written request to your municipality for temporary relief from your caregiving role. A written application means you will receive a written decision, which is important if you need to appeal.

4

Check your employment rights

If you are employed, you may be entitled to caregiver leave. Talk to your employer or HR about short-term or long-term care leave. Adjustments to your working hours may also be possible.

5

Ask about a caregiver appreciation grant

Some municipalities offer a small financial recognition for informal caregivers. Ask at the Wmo desk. The amount is usually modest, but it is formal acknowledgement of your role.

6

Involve an independent client support advisor

They can also help on behalf of the person you care for, not just on your behalf. Sometimes part of the burden on an informal caregiver is resolved by better organising the care for the person they support.

⚠️ Becoming overburdened happens quickly; recovery takes a long time. Do not wait until you break down. A conversation with your local caregiver support centre is free and commits you to nothing.

Frequently asked questions

Am I entitled to support as an informal caregiver?
Yes. Municipalities are required to offer caregiver support under the Wmo. This includes respite care, a caregiver consultant, and sometimes a small financial appreciation. You often have to ask for it explicitly, as it is not always offered automatically.
What is respite care?
Respite care means temporary relief from your caregiving duties so you can rest. It can take the form of temporary residential care, day care for the person you look after, or short-term placement in a care facility. Your municipality arranges this, but you need to apply.
What if the municipality does not recognise me as an informal caregiver?
Ask for a formal decision in writing. Without a written decision, you cannot file an appeal. An independent client support advisor can help you frame your request correctly.
Can I receive payment for my caregiving?
There is no statutory right to a fixed caregiver salary. Some municipalities offer a small financial token of appreciation. Check what your municipality provides through the local Wmo desk.
Where can I go when it becomes too much?
Your GP is often a good first step. Your local caregiver support centre (via your municipality) offers personal guidance and practical help. Mezzo, the national organisation for informal caregivers, also has information and a helpline.
Can I take caregiver leave from work?
Yes. Employees are entitled to short-term care leave and long-term care leave. Short-term leave is partially paid; long-term leave is unpaid but your job is protected. Check with your employer or HR department for the specifics.

Help us make the pattern visible

Your story matters on its own. Together with other experiences, it shows where the system gets stuck. Anonymous is fine.