Fibromyalgia · experiences
Recognised by science, disputed at the counter
Fibromyalgia teaches many people that being ill is not enough: you also have to prove it. Below are a number of patterns that often recur.
🔒 These are anonymized, composite patterns based on what patient associations, research and healthcare providers broadly report on this subject. They are not quotes from one specific person. As soon as we receive real, consented experiences, we publish them here carefully and with attribution.
Recognisable patterns
What people often experience
The diagnosisYears in the making
“I was first treated for stress and then for a burnout, before anyone started counting the pain points.”
The re-examinationRecurring
“I had to explain again what I could no longer do, while nothing in my file had changed except that I was tired of explaining myself.”
ExerciseDaily balancing
“If I have a good day and do too much, I pay it back three days later. From the outside that seems illogical.”
RecognitionYet always
“The Health Council says that it should be taken seriously. I still had to explain it to my employer as if it were a new concept.”
🏎 Need immediate help?
In case of immediate danger to yourself or someone else: call 112. Are you in distress or are you thinking about suicide? You can call or chat with 113 Suicide Prevention day and night via 0800-0113. Zorgfuik is not a crisis service and cannot solve acute requests for help, but we think it is important that you know where you can go.