Migraine ยท experiences

It's not in your head. It's in your brain.

Migraines are often dismissed as an exaggeration. The invisibility between attacks makes it extra difficult to be taken seriously. Below are a number of patterns that often recur.

๐Ÿ”’ These are anonymized, composite patterns based on what patient associations, research and healthcare providers broadly report on this subject. They are not quotes from one specific person. As soon as we receive real, consented experiences, we publish them here carefully and with attribution.
Recognisable patterns

What people often experience

WorkOften
โ€œI often say that I 'have a dip for a moment' instead of that I am having a migraine attack, because the latter raises just too many questions.โ€
Pattern: Invisibility between attacks leads to trivialization
The own pill cabinetFor years
โ€œI just took another painkiller when the last one didn't help anymore, until someone told me that the pills themselves were part of the problem .โ€
Pattern: self-medication slips unnoticed into medication overuse headache
RecognitionAgain and again
โ€œEveryone has a headache sometimes, I hear. But no one lies in the dark with earplugs three days a month in.โ€
Pattern: migraine is confused with normal headache
The search for the right doctorYears
โ€œIt was only during the third GP that I was really asked about how often I took painkillers, and then the penny dropped.โ€
Pattern: quality of recognition varies greatly per healthcare professional

๐ŸŽ Need immediate help?

In case of immediate danger to yourself or someone else: call 112. Are you in distress or are you thinking about suicide? You can call or chat with 113 Suicide Prevention day and night via 0800-0113. Zorgfuik is not a crisis service and cannot solve acute requests for help, but we think it is important that you know where you can go.