ADHD · recognised late

It was seen. Just not as ADHD.

People who get their diagnosis late were usually not invisible. They had often been in the care system for years, with symptoms that kept getting a different label. The trap is not that no one looked, but that no one added it all up.

Why it gets missed

The reasons it comes so late

Not one, but a stack of reasons holds the diagnosis back. Together they make up the delay.

A different label

Symptoms are first read as depression, burnout or anxiety. Those diagnoses are often correct in themselves, but the underlying ADHD stays out of view.

The child image

ADHD was long seen as something for hyperactive boys. That a calm adult or older person could have it too did not fit the picture many care providers had.

Masking well

Many people learned to compensate: seeking structure, working hard, putting themselves last. The better the mask, the less visible the symptoms, until the mask breaks.

Two groups in particular

Women and older people

For these two groups the delay is strongest, each for its own reasons.

♀ Women

The diagnostic criteria were once based on boys. In women, ADHD more often turns inward: dreamy, perfectionist, anxious. Symptoms also fluctuate with hormones (menstruation, pregnancy, menopause) and so get attributed to something else. The masking costs so much energy that it leads to burnout and low mood, and those are what then get the attention.

👴 Older people

Anyone who grew up when ADHD was not yet recognised never got a name for it. Later in life the symptoms get put down to old age, grief or dementia. Sometimes the diagnosis only becomes clear when a fixed structure falls away, for example after the loss of a partner who provided the anchor for years.

Adding it up

Why no one saw the whole

The Zorgfuik pattern in short: there were plenty of clinicians, but each looked at their own piece.

Many separate diagnoses, no one in charge

ADHD on average goes together with three other disorders. Each clinician takes their own part: one the depression, another the anxiety, a third the sleep problems. Each correct on its own. But as long as no one lays all the pieces side by side, the common denominator, ADHD, stays invisible.

Often you are the only one who has seen all the clinicians, and so the only one who can add it all up.

"With each doctor I told a piece. No one laid the pieces side by side. In the end I did that myself, and only then did the word ADHD come up."

How the diagnosis is made

What a good diagnosis involves

ADHD can be reliably established in adults. Not with a brain scan or an online test, but with targeted assessment.

An extensive conversation (a semi-structured interview, often the DIVA), which also covers childhood.
Information from people close to you or from old reports, because ADHD by definition begins in childhood.
Assessment of co-occurring complaints (anxiety, depression, sleep), so the whole picture comes into view.
A diagnosis should give relief and direction, not a label. Many people recognise their whole life in it afterwards.
Sources

Where this information comes from

Underdiagnosis in women and adults
GGZ Standards (Diagnosis and monitoring) and the NTVG: ADHD in adults is still underdiagnosed; women have a greater chance of underdiagnosis. See ggzstandaarden.nl (in Dutch).
ADHD in older people is rarely recognised
KNGF/NVFG and MAX Meldpunt: symptoms are attributed to old age, grief, depression or dementia. See maxmeldpunt.nl (in Dutch).
On average three co-occurring disorders, diagnosis via DIVA
NTVG, ADHD in adults: on average three comorbid disorders; reliable diagnosis with a semi-structured interview. See ntvg.nl (in Dutch).

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