Autism in children & teenagers Β· the figures

18 months signals. 20 weeks waiting period. Years in between.

Autism in children is not missed due to a lack of signals. It is missed because the system between signal and help is slow.

How common it is

Bigger than you think

~18 months

is the age at which the first signs of autism are already visible in many children.

4 to 5 years

is the age at which the diagnosis is often only made in practice, sometimes later.

20 weeks

average waiting time for diagnosis and treatment of autism in mental healthcare, compared to 10 weeks for most other diagnoses.

That 20 weeks is a national average. Individual reports to patient organizations speak of regional waiting times that run up to months, in some cases even up to around a year for a first intake.
What is striking

From pillar to post

According to knowledge organizations in the field of early detection, parents who are concerned at an early stage are regularly referred from one agency to another before an actual investigation is conducted. This takes time that a young developing child does not have.

β€œThe sooner autism is recognised, the sooner the child and the parents receive the right help. Yet many children are not diagnosed until the age of 4 or 5.”

Why it was missed is

It is not in the patient, but in the look

Signals resemble normal behavior

In young children, early signals are sometimes dismissed as a phase, especially if the child is cheerful at other times. happens.

Fragmented route to diagnosis

Consultation agency, GP, school and youth doctor do not always work together seamlessly, so parents have to coordinate themselves.

Structurally long waiting times

Autism has been at the top of mental health diagnoses for years with the longest waiting time for diagnosis and treatment.

What the numbers do not tell

What does and does not count

Yes counted

What is visible

  • Children who ultimately receive a diagnosis
  • Treatment outcomes of early intervention programs
  • National average waiting time figures
Not counted

What is invisible remains

  • How many months or years passed between initial care and diagnosis
  • Families stuck between agencies without anyone in control tackled
  • The development opportunities that were lost in the waiting period
Sources

Where these figures come from

Signs around 18 months, diagnosis often only at 4 or 5 years
Autism Young Child, about the importance of early recognition. See autismejongekind.nl.
Diagnosis possible from 24 months
NVA, about diagnosis in young children. See autisme.nl.
20 weeks average waiting time, longest of almost any diagnosis
Knowledge Center Phrenos / NIPA, advisory report waiting times for autism. See kenniscentrumphrenos.nl.
Regional waiting times up to a year
Autism Digital, experiences of people waiting in mental healthcare. See autismedigitaal.nl.
Puberty as a vulnerable phase
Autismespecialisme.nl, about how autism is diagnosed per age phase. See autismespecialisme.nl.

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