IBS · the figures

1 in 10. And two thirds are silent about it.

IBS is one of the most common intestinal disorders in the world. Yet it remains largely under the radar, not because it is rare, but because people do not quickly bring it up.

How common it is

Bigger than you think

5 to 15%

of the Dutch population has IBS, depending on the diagnostic criteria used.

33 to 50%

of people with symptoms consistent with IBS, at some point seek help from a doctor.

90%

of the people with IBS are completely treated by the GP, without referral to a specialist.

That last figure is not a problem in itself: for most people with IBS, the GP is the right place. The problem is that three quarters of people with symptoms never reach that approach, because shame keeps them away from the first step.
What is striking

Women more often than men

International research according to the Rome IV criteria shows a prevalence of 5.2% in women compared to 2.9% in men. The prevalence in the Netherlands is highest in the age group 18 to 39 years, and then gradually decreases.

“Abdominal pain and bowel problems are not the type of symptoms with which you can easily open a conversation, not even with your GP.”

Why it was missed is

It is not in the patient, but in the look

Shame

Abdominal pain, flatulence and changes in bowel habits are topics that people do not spontaneously bring up.

Diagnosis by exclusion

There is no test that shows IBS. First, other conditions are excluded, which takes time.

Changing picture

Symptoms vary per person and per day, making the pattern difficult to capture in one GP visit.

What the numbers do not tell

What does and does not count

Yes counted

What is visible

  • People who ultimately end up at the GP
  • Sales of fiber preparations and laxatives
  • Research into the FODMAP diet and its effectiveness
Not counted

What is invisible remains

  • The two thirds who never seek help
  • How many social moments are canceled as a precaution
  • The mental burden of an unpredictable body
Sources

Where these figures come from

5 to 15% of the population, various criteria
NICE nutritional information about the low-FODMAP diet and IBS prevalence. See nice-info.be, and NTVG learning article IBS. See ntvg.nl.
Only a third seeks help, 90% stay with the GP
NHG Standard Irritable Bowel Syndrome (IBS), the national guideline for GPs. See guidelines.nhg.org.
FODMAP diet effective at 68 to 87%
NTVG article about the FODMAP-restricted diet for IBS. See ntvg.nl.
Rome IV criteria and prevalence by gender
Guidelines database, IBS Diagnostics module. See productendatabase.nl.

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